Well yesterday we had to go to Dublin for Jono’s check up. I had my list ready about whether he can go swimming, have baths etc. We also wanted to ask about the pain he has in his shoulders and was it normal that he looks slightly hunched again.
Of course everything went out the window when we got to see the consultant. He had done an xray of Jono and his spine has started to curve at the top including the rod so he is thinking of extending the spinal fusion up to Jono’s neck. We were really shocked, we just weren’t expecting that. Poor Jono having to go through it all again. Of course now that I’m home I have all kinds of questions that I should have asked. Thankfully there is the scoliosis support website. As always they are a great help.
We won’t know anymore until May when Jono has to go back for another check up. They will xray him again and see if the curve has progressed. In the meantime they have referred him for physiotherapy and occupational therapy to see if it will help with the shoulder pain.