Appointment update

Thank you all for the good wishes about Jono’s appointment we really appreciate all the thoughts and it helped knowing that we had so many people thinking of us. I drove up to Dublin because Jono isn’t fit for that length of journey on public transport and between the train and the LUAS it’s almost […]

Wheely Great News

Happy days as Jono got a wheelchair today. That’s going to make life so much easier for him and we are delighted. He also got an out- patient appointment through for Dublin for the beginning of next month. It’s great that things are finally moving forward and thank you all so much for your lovely […]

Wheelchairs and waiting

If you didn’t see the post last week about Jono you can read it here. There’s not really any news on that front. A few councillors have been in touch, just a few (Chris MacManus, Marie Casserly and Dara Mulvey) this is quite disappointing considering how many were tagged and contacted. The occupational therapist phoned […]

No Country for the Disabled

Many of you know that my son Jono has scoliosis and kyphosis (and Asperger’s Syndrome). Many of you also know that he is now in such pain he can’t walk far or stand unaided for long periods of time. I asked the GP to refer him to Occupational Therapy Services. Over two months have passed […]

Feeling Frustrated

I’m not sure if I told you but Jono had an x-ray a couple of weeks ago. As well as the scoliosis issues he now has facet arthropathy. I had no idea what this was but I do know, thanks google. So it’s time for me to start shouting again – why hasn’t he had […]

Back to waiting

If you are a regular reader of the blog you’ll know about my son Jono. He has scoliosis and kyphosis and had a spinal fusion surgery in 2009 when he was 16. He was great for a few years but has been in a lot of pain in recent years. It seems the spine is […]