Thank you all for the good wishes about Jono's appointment we really appreciate all the thoughts and it helped knowing that we had so many people thinking of us. I drove up to Dublin because Jono isn't fit for that length of journey on public transport and between the train and the LUAS it's almost... Continue Reading →
Feeling Frustrated
I'm not sure if I told you but Jono had an x-ray a couple of weeks ago. As well as the scoliosis issues he now has facet arthropathy. I had no idea what this was but I do know, thanks google. So it's time for me to start shouting again - why hasn't he had... Continue Reading →
Versatis Patches – the talk continues
Following on from my posts last week about the withdrawal of Versatis Patches by the HSE I have a couple of updates. Firstly thank you to Joe Duffy for continuing the conversation and giving us a platform to speak. You can hear more about Jono's story on this podcast at around 37 minutes in. Secondly... Continue Reading →
Spines and Spasms
It's been a couple of very hectic days and my stress levels aren't the better for it but I'll get through it. There was a EuroSpine public conference in Dublin yesterday and I went along to see if I could find out anything that would help Jono. For those of you who don't know Jono... Continue Reading →
The Wait Begins
If you follow me on Facebook and Twitter you'll know that we are just back from a couple of days in Newcastle which I'll tell you about later. When we arrived back in Dublin we had to head to Tallaght as Jono had a hospital appointment. They always seem to call everyone in at the... Continue Reading →
The Waiting Game
I'm sure if you live in Ireland you will know all about the huge waiting list for children with scoliosis to be seen by a consultant. Jono had his spinal surgery in 2009 and it was a battle back then. Sadly things haven't improved at all over the last 8 years. You can watch Megan... Continue Reading →
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