I'm not sure if I told you but Jono had an x-ray a couple of weeks ago. As well as the scoliosis issues he now has facet arthropathy. I had no idea what this was but I do know, thanks google. So it's time for me to start shouting again - why hasn't he had... Continue Reading →
Versatis Patches – the talk continues
Following on from my posts last week about the withdrawal of Versatis Patches by the HSE I have a couple of updates. Firstly thank you to Joe Duffy for continuing the conversation and giving us a platform to speak. You can hear more about Jono's story on this podcast at around 37 minutes in. Secondly... Continue Reading →
Spines and Spasms
It's been a couple of very hectic days and my stress levels aren't the better for it but I'll get through it. There was a EuroSpine public conference in Dublin yesterday and I went along to see if I could find out anything that would help Jono. For those of you who don't know Jono... Continue Reading →
The Wait Begins
If you follow me on Facebook and Twitter you'll know that we are just back from a couple of days in Newcastle which I'll tell you about later. When we arrived back in Dublin we had to head to Tallaght as Jono had a hospital appointment. They always seem to call everyone in at the... Continue Reading →
The Waiting Game
I'm sure if you live in Ireland you will know all about the huge waiting list for children with scoliosis to be seen by a consultant. Jono had his spinal surgery in 2009 and it was a battle back then. Sadly things haven't improved at all over the last 8 years. You can watch Megan... Continue Reading →
Good news for Jono
Regular readers to the blog will know that Jono has kyphosis and scoliosis. You'll also know he's been waiting for an appointment to be seen by the consultant. At last we have good news. Jono has been waiting to be seen since May 2015, I spoke to the hospital in June and they weren't very hopefully... Continue Reading →
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