A mid-week roundup

A blog post with a bit of everything today. Firstly Jono had his pain management injections today. The last ones were in August and he was meant to have more after four months but the health service is stretched way beyond capacity. This was very evident today when we arrived at the hospital. The waiting […]

Appointment update

Thank you all for the good wishes about Jono’s appointment we really appreciate all the thoughts and it helped knowing that we had so many people thinking of us. I drove up to Dublin because Jono isn’t fit for that length of journey on public transport and between the train and the LUAS it’s almost […]

Wheelchairs and waiting

If you didn’t see the post last week about Jono you can read it here. There’s not really any news on that front. A few councillors have been in touch, just a few (Chris MacManus, Marie Casserly and Dara Mulvey) this is quite disappointing considering how many were tagged and contacted. The occupational therapist phoned […]

No Country for the Disabled

Many of you know that my son Jono has scoliosis and kyphosis (and Asperger’s Syndrome). Many of you also know that he is now in such pain he can’t walk far or stand unaided for long periods of time. I asked the GP to refer him to Occupational Therapy Services. Over two months have passed […]

Feeling Frustrated

I’m not sure if I told you but Jono had an x-ray a couple of weeks ago. As well as the scoliosis issues he now has facet arthropathy. I had no idea what this was but I do know, thanks google. So it’s time for me to start shouting again – why hasn’t he had […]

25

25 years ago Jono, our lovely son, came into the world. The years have passed in the blink of an eye. Jono hasn’t had an easy life, he’s had a lot of illness to deal with and spends a lot of his time laid up and waiting for appointments. He has a great sense of […]