No Country for the Disabled

Many of you know that my son Jono has scoliosis and kyphosis (and Asperger's Syndrome). Many of you also know that he is now in such pain he can't walk far or stand unaided for long periods of time. I asked the GP to refer him to Occupational Therapy Services. Over two months have passed... Continue Reading →

Spines and Spasms

It's been a couple of very hectic days and my stress levels aren't the better for it but I'll get through it. There was a EuroSpine public conference in Dublin yesterday and I went along to see if I could find out anything that would help Jono. For those of you who don't know Jono... Continue Reading →

Good news for Jono

Regular readers to the blog will know that Jono has kyphosis and scoliosis. You'll also know he's been waiting for an appointment to be seen by the consultant. At last we have good news. Jono has been waiting to be seen since May 2015, I spoke to the hospital in June and they weren't very hopefully... Continue Reading →

Jono’s Journey

I'm speechless at the moment, just overwhelmed at the kindness of people. When I started the blog back in 2009 a lot of the posts involved Jono. Jono has had a lot of health problems including kyphosis and scoliosis causing his back to be curved at a 90 degree angle. He had a spinal fusion... Continue Reading →

Four years ago today

It's hard to believe that its four years ago today since Jono had his spinal fusion surgery. Time really does fly. We had to sing 'Happy Birthday' to the 'twin rods' today 🙂 If you want to read the whole story from four years ago it's here. Well done Jono, the bravest person I know... Continue Reading →

Dublin in December

Another long overdue blog. We had two trips to Dublin last month (one after the other...always the way). Not for pleasure, both hospital visits. One for blood tests for Lucy and I...to see if we have a bleeding disorder (we have to go back next month for further tests). The other for Jono's spinal check-up.... Continue Reading →

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