I’m not sure if I told you but Jono had an x-ray a couple of weeks ago. As well as the scoliosis issues he now has facet arthropathy. I had no idea what this was but I do know, thanks google. So it’s time for me to start shouting again – why hasn’t he had pain numbing injections since January? Why are we still waiting for the OT to contact us? Why hasn’t he been seen by a consultant in over a year?
It’s so bloody frustrating and I can’t begin to imagine how Jono feels, but it’s no wonder he looks grey in the face. Maybe if he ever gets the treatment he needs he might be able to have some kind of life again. He couldn’t come out with us for Andy’s birthday because he wasn’t well enough so Lucy minded him. He can’t go to Dublin to see his friends anymore. It’s just a desperately sad situation that a 25 year old shouldn’t have to deal with.
Anyway it’s time for me to start rattling a few cages, I seem to be quite good at it as I’ve noticed recently. God help the poor people who have no one to speak up for them.
Magnumlady Blog 
OT hasn’t called to me in 4 years, despite requests.
Pain Clinic waiting lists are appallingly long. Try ringing SUH switchboard and ask for pain nurse Deirdre – she’s kind, understanding and gets things done.
Awaiting tests for more neurosurgery here, waiting….
Good luck with your quest.