Appointment update

Thank you all for the good wishes about Jono's appointment we really appreciate all the thoughts and it helped knowing that we had so many people thinking of us. I drove up to Dublin because Jono isn't fit for that length of journey on public transport and between the train and the LUAS it's almost... Continue Reading →

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No Country for the Disabled

Many of you know that my son Jono has scoliosis and kyphosis (and Asperger's Syndrome). Many of you also know that he is now in such pain he can't walk far or stand unaided for long periods of time. I asked the GP to refer him to Occupational Therapy Services. Over two months have passed... Continue Reading →

Feeling Frustrated

I'm not sure if I told you but Jono had an x-ray a couple of weeks ago. As well as the scoliosis issues he now has facet arthropathy. I had no idea what this was but I do know, thanks google. So it's time for me to start shouting again - why hasn't he had... Continue Reading →

Back to waiting

If you are a regular reader of the blog you'll know about my son Jono. He has scoliosis and kyphosis and had a spinal fusion surgery in 2009 when he was 16. He was great for a few years but has been in a lot of pain in recent years. It seems the spine is... Continue Reading →

World Autism Day

Today is World Autism Day. I don't usually write about autism but I thought I'd share our story. Jono, my son, has Asperger's Syndrome which is a milder autism spectrum disorder. Of course autism is one of the 'hidden disabilities' so people may not be aware. Jono wasn't diagnosed until he was 13 years old... Continue Reading →

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