Appointment update

Thank you all for the good wishes about Jono’s appointment we really appreciate all the thoughts and it helped knowing that we had so many people thinking of us. I drove up to Dublin because Jono isn’t fit for that length of journey on public transport and between the train and the LUAS it’s almost […]

No Country for the Disabled

Many of you know that my son Jono has scoliosis and kyphosis (and Asperger’s Syndrome). Many of you also know that he is now in such pain he can’t walk far or stand unaided for long periods of time. I asked the GP to refer him to Occupational Therapy Services. Over two months have passed […]

Feeling Frustrated

I’m not sure if I told you but Jono had an x-ray a couple of weeks ago. As well as the scoliosis issues he now has facet arthropathy. I had no idea what this was but I do know, thanks google. So it’s time for me to start shouting again – why hasn’t he had […]

Gently Drifting

I’m still demented with insomnia, I’m back on the magnesium again to see if I can get sleep. I’ve left the phone downstairs, kept the lights down, tried listening to relaxing music, tried meditation, tried breathing and goodness knows what else but I still can’t sleep!   Today I went along to have a reiki […]

I’m a cover girl!

Well what an exciting day, I can actually say I’m a cover girl on a magazine. Now I know some people get on the front cover of Vogue or Cosmopolitan but I’m on the cover of the Migraine Ireland magazine! I’m delighted and I love the photo – Lucy took this of me and it […]

World Autism Day

Today is World Autism Day. I don’t usually write about autism but I thought I’d share our story. Jono, my son, has Asperger’s Syndrome which is a milder autism spectrum disorder. Of course autism is one of the ‘hidden disabilities’ so people may not be aware. Jono wasn’t diagnosed until he was 13 years old […]