Many of you know that my son Jono has scoliosis and kyphosis (and Asperger’s Syndrome). Many of you also know that he is now in such pain he can’t walk far or stand unaided for long periods of time. I asked the GP to refer him to Occupational Therapy Services. Over two months have passed […]
I’m not sure if I told you but Jono had an x-ray a couple of weeks ago. As well as the scoliosis issues he now has facet arthropathy. I had no idea what this was but I do know, thanks google. So it’s time for me to start shouting again – why hasn’t he had […]
I’m still demented with insomnia, I’m back on the magnesium again to see if I can get sleep. I’ve left the phone downstairs, kept the lights down, tried listening to relaxing music, tried meditation, tried breathing and goodness knows what else but I still can’t sleep! Today I went along to have a reiki […]
Well what an exciting day, I can actually say I’m a cover girl on a magazine. Now I know some people get on the front cover of Vogue or Cosmopolitan but I’m on the cover of the Migraine Ireland magazine! I’m delighted and I love the photo – Lucy took this of me and it […]
Today is World Autism Day. I don’t usually write about autism but I thought I’d share our story. Jono, my son, has Asperger’s Syndrome which is a milder autism spectrum disorder. Of course autism is one of the ‘hidden disabilities’ so people may not be aware. Jono wasn’t diagnosed until he was 13 years old […]
It’s been a mixed bag of a week. After the stumble there were a couple more wobbles. It teaches me I’m not invincible and to pay more head of my feelings so that’s a good thing.