One of the things I love most about working at Momentum in Leitrim Village is being involved in projects that genuinely aim to improve people’s lives. Recently, I’ve been lucky to work on an inspiring European collaboration called ENDOs, funded by the Erasmus+ education and training programme, and it’s one that feels especially close to my heart.
The ENDOs project is dedicated to supporting adults living with chronic illness, with a particular focus on endometriosis. As someone who lived with endometriosis myself, and who has a family member with chronic pain, I know just how confusing, overwhelming, and isolating navigating healthcare can feel. That’s why this project matters so much.
What makes ENDOs unique is how it brings together health, art, technology, and narrative medicine to raise awareness and improve understanding of endometriosis. By working across disciplines, partners are creating accessible resources, including artwork, storytelling approaches, and simplified medical information, to help make complex health topics easier to understand and less intimidating.
One of the most exciting parts of the project is a digital tool called EndoStand. This innovative resource is designed to translate medical reports into clear, everyday language. Instead of being faced with confusing medical jargon, people can gain understandable insights into their health, helping them feel more informed, empowered, and in control of their journey with endometriosis.
We’re now inviting individuals and organisations to get involved and help shape EndoStand. We’d love you to try the tool and explore the training materials. Follow the link to the pilot testing survey, you’ll gain access to EndoStand, along with guidance on how to use it. https://www.surveymonkey.com/r/X7NH655
Hearing directly from people with lived experience of endometriosis and chronic pain is incredibly important to us. Your feedback will help ensure this tool truly meets the needs of those it’s designed to support. We strongly believe that EndoStand can make healthcare information more accessible, and offer knowledge, clarity, and confidence to people navigating chronic illness.
I’m also delighted to share the news that a new endometriosis support group has recently started in Sligo, offering a safe and welcoming space for people to connect, share experiences, and support one another locally. Community support can make such a difference, and it’s wonderful to see more spaces like this becoming available. They have their first meeting this Sunday 1st, February, in The Riverside Hotel. You can find out more on Facebook.
If you’d like to learn more about the ENDOs project, you can visit the website here: https://endostories.eu/
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