Jono’s appointment

Yesterday Jono finally got seen in Tallaght Hospital after waiting for almost 18 months. Jono had a spinal fusion surgery done there in 2009 and was doing OK until a couple of years ago when he started deteriorating. It's a long trip from Sligo to Tallaght, almost 4 hours each way by public transport, and... Continue Reading →

Good news for Jono

Regular readers to the blog will know that Jono has kyphosis and scoliosis. You'll also know he's been waiting for an appointment to be seen by the consultant. At last we have good news. Jono has been waiting to be seen since May 2015, I spoke to the hospital in JuneĀ and they weren't very hopefully... Continue Reading →

Back on a Rant

Regular readers to the blog will know all about Jono's spinal problems. Jono had severe kyphosis and scoliosis (curvature of the spine) and after a long wait he finally had spinal fusion surgery in 2009 in Tallaght, Dublin. The surgery involved metal rods being inserted either side of his spine. We thought it was a... Continue Reading →

Dublin in December

Another long overdue blog. We had two trips to Dublin last month (one after the other...always the way). Not for pleasure, both hospital visits. One for blood tests for Lucy and I...to see if we have a bleeding disorder (we have to go back next month for further tests). The other for Jono's spinal check-up.... Continue Reading →

The weekend

Well it's been a bit of a week with one thing and another. The photo was taken from our drive on Thursday morning, I love to see the sunrise....we don't see that many of them though. On Tuesday Andy wound up in hospital. He only went to the doctors for a blood test, he's been... Continue Reading →

The cut backs continue

It's heartbreaking to think that two years after we began fighting our battle to get Jono his much-needed surgery there are still children out there going through agony. I think the health service for children in Ireland is shocking. I will never understand how people who have abused their bodies can get knee replacements, hip... Continue Reading →

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