Yesterday Jono finally got seen in Tallaght Hospital after waiting for almost 18 months. Jono had a spinal fusion surgery done there in 2009 and was doing OK until a couple of years ago when he started deteriorating. It's a long trip from Sligo to Tallaght, almost 4 hours each way by public transport, and... Continue Reading →
Dublin in December
Another long overdue blog. We had two trips to Dublin last month (one after the other...always the way). Not for pleasure, both hospital visits. One for blood tests for Lucy and I...to see if we have a bleeding disorder (we have to go back next month for further tests). The other for Jono's spinal check-up.... Continue Reading →
At the hospital
Well most of today was spent in the hospital. Lucy had to have some tests done because she's been feeling faint and dizzy. Anyway they were very thorough and did a lot of tests. She has to have B12 injections and a scan on her heart sometime. We were there for the day, so Lucy... Continue Reading →
The autism controversy continues
Following on from my previous blog. The autism controvesy is still continuing. I got to listen to an hour of Joe Duffys Liveline programme today which you can listen to here. Dr Sami Timimi was on the phone. The Tony Humphrey's article was based on a book by Dr. Timimi. Although it appears it was... Continue Reading →
The cut backs continue
It's heartbreaking to think that two years after we began fighting our battle to get Jono his much-needed surgery there are still children out there going through agony. I think the health service for children in Ireland is shocking. I will never understand how people who have abused their bodies can get knee replacements, hip... Continue Reading →
Happy Monday
Well it's been a really good day today. As you know the course that Jono was hoping to start soon has been finished due to cut backs. So today we had a meeting to see what there was in the way of courses. We talked about what Jono would like. Mainly to socialise with people... Continue Reading →
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