Yesterday I was on RTE Radio 1 talking to Joe Duffy on Liveline about the Versatis patches. I wanted to tell Jono's story and how he is suffering due to these patches being removed as a treatment for chronic pain by the HSE. I didn't get very long to talk as there are so many... Continue Reading →
Prescription Problems
My blood is boiling this afternoon listening to Joe Duffy and Liveline on RTE Radio 1. It was all about the plight of poor people in chronic pain who can now longer get the Versatis patches from the HSE. Jono is one of those people, at 24, he's probably one of the youngest ones that... Continue Reading →
Spines and Spasms
It's been a couple of very hectic days and my stress levels aren't the better for it but I'll get through it. There was a EuroSpine public conference in Dublin yesterday and I went along to see if I could find out anything that would help Jono. For those of you who don't know Jono... Continue Reading →
A possible breakthrough
If you have been reading the blog regularly you'll know I have been having a bit of a rough time with anxiety and depression. I got a phonecall yesterday that might make things better. Back when I first saw Siobhan O'Farrell Nutriation at the beginning of the year she was concerned about how low in... Continue Reading →
The Wait Begins
If you follow me on Facebook and Twitter you'll know that we are just back from a couple of days in Newcastle which I'll tell you about later. When we arrived back in Dublin we had to head to Tallaght as Jono had a hospital appointment. They always seem to call everyone in at the... Continue Reading →
The Waiting Game
I'm sure if you live in Ireland you will know all about the huge waiting list for children with scoliosis to be seen by a consultant. Jono had his spinal surgery in 2009 and it was a battle back then. Sadly things haven't improved at all over the last 8 years. You can watch Megan... Continue Reading →
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