Jono’s appointment

Yesterday Jono finally got seen in Tallaght Hospital after waiting for almost 18 months. Jono had a spinal fusion surgery done there in 2009 and was doing OK until a couple of years ago when he started deteriorating. It's a long trip from Sligo to Tallaght, almost 4 hours each way by public transport, and... Continue Reading →

San Francisco Sunday

  Another busy day in San Francisco. I started off the morning with a cable car ride while Jono had a sleep in. When he was up and about we headed to Pier 39 again. I love the pier, especially the sea lions and there are some really cool shops there including a Christmas shop... Continue Reading →

From Sligo to San Francisco

  Well it's 4am here in San Francisco but we are both awake - it's 12 noon in Sligo. We arrived safe and sound and can't begin to tell you how excited we both are. So as you know we took the bus from Sligo to Dublin Airport where we were greeted by a shuttle... Continue Reading →

Join us on Jono’s Journey

Well the time has almost arrived for Jono and I to head over to San Francisco for Jono to take part in the Pokemon World Championships. This has been Jono's dream for as long as I can remember and thanks to so many wonderful people it's become a reality. You can read the full back... Continue Reading →

Good news for Jono

Regular readers to the blog will know that Jono has kyphosis and scoliosis. You'll also know he's been waiting for an appointment to be seen by the consultant. At last we have good news. Jono has been waiting to be seen since May 2015, I spoke to the hospital in June and they weren't very hopefully... Continue Reading →

On the radio

Today I was on RTE Radio 1 being interviewed by Dave Fanning about Jono's Journey to San Francisco. I was kind of caught on the hop and was wheeling the bin down the drive when the phone rang so I was very nervous. In fact it was difficult to talk and breath at the same... Continue Reading →

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