Many of you know that my son Jono has scoliosis and kyphosis (and Asperger's Syndrome). Many of you also know that he is now in such pain he can't walk far or stand unaided for long periods of time. I asked the GP to refer him to Occupational Therapy Services. Over two months have passed... Continue Reading →
Feeling Frustrated
I'm not sure if I told you but Jono had an x-ray a couple of weeks ago. As well as the scoliosis issues he now has facet arthropathy. I had no idea what this was but I do know, thanks google. So it's time for me to start shouting again - why hasn't he had... Continue Reading →
Back to waiting
If you are a regular reader of the blog you'll know about my son Jono. He has scoliosis and kyphosis and had a spinal fusion surgery in 2009 when he was 16. He was great for a few years but has been in a lot of pain in recent years. It seems the spine is... Continue Reading →
World Autism Day
Today is World Autism Day. I don't usually write about autism but I thought I'd share our story. Jono, my son, has Asperger's Syndrome which is a milder autism spectrum disorder. Of course autism is one of the 'hidden disabilities' so people may not be aware. Jono wasn't diagnosed until he was 13 years old... Continue Reading →
Havin’ A Coffee – October 2017
After the phenomenal success of the Chari-Tea Coffee Morning for Havin' A Laugh I've decided to have another one. This time is just a social one for people to meet for a cuppa and a chat. It's on Monday 23rd October in The Blind Tiger, Sligo from 10am - 12 noon and all are welcome.... Continue Reading →
Where I am now
I'm still buzzing from Monday and I've been quite reflective about it all. It's been a real learning curve for me in a very good way. As you know depression hit me this year, the anxiety was always looming but the depression was a new thing. I'm going to counselling sessions, I can't say it's... Continue Reading →
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