Pancakes and Polyps

Today was a stressful day. Jono had to go to the day clinic in Sligo University Hospital for an endoscopy test. As always Jono was cool, calm and collected. I, on the other hand, was a bag of nerves. I think it's the waiting around that gets to me. So when Jono was in having... Continue Reading →

Talking to Joe

Yesterday I was on RTE Radio 1 talking to Joe Duffy on Liveline about the Versatis patches. I wanted to tell Jono's story and how he is suffering due to these patches being removed as a treatment for chronic pain by the HSE. I didn't get very long to talk as there are so many... Continue Reading →

Prescription Problems

My blood is boiling this afternoon listening to Joe Duffy and Liveline on RTE Radio 1. It was all about the plight of poor people in chronic pain who can now longer get the Versatis patches from the HSE. Jono is one of those people, at 24, he's probably one of the youngest ones that... Continue Reading →

Happy Birthday Jono

Jono turns 24 years old today. Those 24 years have gone in the blink of an eye. That tiny baby has turned into a wonderful man who I am proud to call my son. Jono is an inspiration. He has had various health problems since he was born and each day is a struggle for... Continue Reading →

The Wait Begins

If you follow me on Facebook and Twitter you'll know that we are just back from a couple of days in Newcastle which I'll tell you about later. When we arrived back in Dublin we had to head to Tallaght as Jono had a hospital appointment. They always seem to call everyone in at the... Continue Reading →

The Waiting Game

I'm sure if you live in Ireland you will know all about the huge waiting list for children with scoliosis to be seen by a consultant. Jono had his spinal surgery in 2009 and it was a battle back then. Sadly things haven't improved at all over the last 8 years. You can watch Megan... Continue Reading →

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