It wasn’t the best day I’ve ever had.
It started off OK with both Jono and Lucy going for amatsu treatments and me eating ice cream but it went downhill.
Poor Lucy isn’t sleeping. I think she’s had about 3 hours of sleep in the last two days. She’s due back at college on Monday and I’m worried about her.
Jono has been in a lot more pain recently due to his scoliosis and kyphosis. This week he got a letter to say he’s now on the waiting list as a day case for pain injections. Bearing in mind he was seen in April this is a bit much.
We also found out that the back patches he’s had for the last two years to help with the pain are now only licenced for patients with shingles.
I took him to the doctor this afternoon and I’m just so frustrated and angry with the health service. He’s 24 years old and in constant pain which is now making him dizzy and sick. His shoulder blade has got worse in the last few weeks but an x-ray wasn’t suggested.
I ended up swearing in the chemist, I hardly ever swear. It’s just an awful situation.
On the way home a cyclist fell off their bike just ahead of my car. The poor person, I felt so bad for them. I waited until help arrived and was pretty shaken when I got home. Not half as shaken as the cyclist.
I’m hoping tomorrow will be a better day. I wish I could take the pain away from my children. I hate feeling so useless.
Val… I am so sorry…. the pain of your children is like no other.. I know… it is devastating….have you tried alternative medicine for Jono?? .. I wish there was something I could do ..
Val, it’s so much more difficult to witness one’s children suffer than oneself.
I’m not too sure, but I heard last week, when Versatis patches were withdrawn except for post hepatic pain, that they may be available off-label for those they help.
Could you ring Jono’s consultant’s secretary and ask for prescription?
I hope that works out. xxx