A mid-week roundup

A blog post with a bit of everything today. Firstly Jono had his pain management injections today. The last ones were in August and he was meant to have more after four months but the health service is stretched way beyond capacity. This was very evident today when we arrived at the hospital. The waiting […]

Appointment update

Thank you all for the good wishes about Jono’s appointment we really appreciate all the thoughts and it helped knowing that we had so many people thinking of us. I drove up to Dublin because Jono isn’t fit for that length of journey on public transport and between the train and the LUAS it’s almost […]

No Country for the Disabled

Many of you know that my son Jono has scoliosis and kyphosis (and Asperger’s Syndrome). Many of you also know that he is now in such pain he can’t walk far or stand unaided for long periods of time. I asked the GP to refer him to Occupational Therapy Services. Over two months have passed […]

Back to waiting

If you are a regular reader of the blog you’ll know about my son Jono. He has scoliosis and kyphosis and had a spinal fusion surgery in 2009 when he was 16. He was great for a few years but has been in a lot of pain in recent years. It seems the spine is […]

Looking at HSE Facts and Figures

In light of the Versatis patches being withdrawn by the HSE I was looking into some of the spending by the HSE. I’m not targeting anyone as I know people are entitled to health care for various reasons but I am wondering if perhaps cuts could be made elsewhere.

Talking to Joe

Yesterday I was on RTE Radio 1 talking to Joe Duffy on Liveline about the Versatis patches. I wanted to tell Jono’s story and how he is suffering due to these patches being removed as a treatment for chronic pain by the HSE.